Life-saving medicine listed for Spinal Muscular Atrophy patients

The Turnbull Government will provide $241 million to list a vital and life-saving medicine which treats Spinal Muscular Atrophy (SMA), cutting the cost to South West patients by hundreds of thousands of dollars.

Member for Forrest Nola Marino said from 1 June this year we will make Spinraza available on the Pharmaceutical Benefits Scheme (PBS) for the treatment of Type 1, Type 2 and Type 3a SMA for all patients under the age of 18.

“This will be both life-saving and life-changing for hundreds of young patients and their families,” Mrs Marino said.

“Patients would otherwise pay more than $367,850 a year for the medicine. This listing will now mean they only pay a maximum of $39.50 per script, with concessional patients paying just $6.40. This vital medicine will no longer be out of reach for patients.

“Spinraza is the first and only treatment of its kind to be listed on the PBS for SMA.The medicine works by slowing progression of the disease and in many cases the drug can halt the progression of the disease, and for others it can significantly improve motor function.”

Since coming into Government, the Turnbull Government has helped improve the health of Australians by subsidising more than $8.3 billion worth of new medicines.